It started this morning with me finally being totally relaxed and just enjoying the morning. I was listening to Soundscapes on the TV, burning a very fall-ish candle and reading the news online. Then it all came to a screeching halt. Nope...it wasn't the kids. It was a phone call from the hospital telling me that they ran Kenny's Medicaid number through and it came back invalid. ummmm...WHAT?! The kid is supposed to be going into surgery tomorrow! Anyhow...after a lot of phone calls, and a mad crazy woman threatening to call the local news if this didn't get resolved...it is just about resolved.
Kenny is having his g-tube placed tomorrow.
If all of you can please say a prayer for my sweet little miracle boy, that would be GREATLY appreciated. He has beat the odds from birth...1 lb, 7 oz (I buy ground meat that weighs more than that), BPD/Chronic Lung Disease, mod-severe bilateral hearing loss, eye problems, developmental delays, epilepsy, mild CP, mild Autism and Failure to thrive for which is the reason for his g-tube. He has beat infections after infections and has surprised us all. Hospital stays out the wah-zoo, procedures galore and much more.
We know this is the best thing for him, but we are scared to death. Scared at the fact that our son is having another operation. Scared at the fact that we have no clue what to expect with this new life with a g-tube kid. Just scared of everything.
Thank you for all your kindness, support and prayers through these last 3 years!
He is scheduled for surgery at 7:30 AM. I will update when I can.
For those of you that have healthy children, thank God every day that you never have to deal with daily meds, hospital stays, operations, and the unknown of what tomorrow will bring. Yes, we all live with the unknown, but with a chronically sick child or one with special needs, it makes it that much more scary.
Thank you again for the prayers and positive thoughts for Kenny to get through this and for us to also get through this.
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5 comments:
I know you will get through it you are an amzingly strong and inspirational family! You will make a new normal as you hve all along up until now. I felt this same way goininto little mondells surgery in December. I was scared and nervous yet happy and relieved. He got his gtube and it has been the best thing for him as you know it will be for Kenny! It has a learning curve but in nobtime seems Luke secon nature. I will tell you to try everything to get the zevex internalite infinity pump. We had the kangaroo Joey at first and it's huge an just a giant hassle for a mobile toddler who is wanting to go go go! Good luck and I will be praying for you all!
Samantha Johnson =)
Lots of prayers for Kenny. He's definately a fighter.
Saying a prayer for you and Kenny. Hang in there, it will be alright and he will come out of this surgery stonger.
(((((Michele and Kenny and Family))))) I'll be thinking of you. Be strong!!!
I have been praying for you all morning! Looking forward to how much this helps Kenny!
As a mom with a little girl w/cp, who doesn't have to deal with the daily meds, lots of dr/hospital trips/stays, etc, I don't know how you do it! The issues we deal with pale in comparison to what you go through every day...and yet I don't know how we would deal with any more at times! You are a wonderful mother, and a great inspriation!
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