A NICU reunion

Its been over seven years since Kenny spent 129 days in the NICU...sure, he's been hospitalized several thousand times since, but to spend a few hours with these wonderful doctors and nurses that have taken special care of our little guy...who basically kept him alive...after all these years, I am so grateful to them. Even after all these years, I basically consider them family! They loved Kenny (and Nick) so much, they cared for him...kept his little lungs breathing, saved him from numerous infections and fed him when I couldn't....I am forever and deeply grateful.

So.much.fun!

 

Gina was in Heaven with a Nertle Turtle aka: Teenage Mutant Ninja Turtles

 

 

 This is one of Kenny's old nurses...

 Kenny holding up a preemie diaper...which btw...was HUGE on him!

 Mommy and Kenny (don't look so thrilled Ken...haahaaahaa)

 crafts!

 the welcome table...

 

 

 decorating cupcakes!

 

 

 props for the photo booth

 Kenny and Dr.Collin

So thank you again MetroHealth Medical Center and all the wonderful doctors and nurses...for everything you've done and continue to do for Kenny and our family!  

Cant wait for next years reunion!!!

What does "stable" actually mean?

Kenny had his comprehensive care appointment today. They check his weight, height, lungs, BP, and nutrition. It all went fairly well. He hasn't lost or gained weight but the doctor noticed that he looked a little sunken in in the cheeks. I noticed it too, but didn't want to sound like a worry wart of a mom. We decided to start back up on his duo cal to see I'd that will add some weight to his body. Their main concern is that his body will start sitting down if he isn't getting enough calories...so were going to bring on as many calories as possible.
She asked me I'd I had any questions to which I said no, then she asked me how I was doing. Ok...well...you don't ask someone who has been going through he** these last 6 years, how I'm doing. I bawled my eyes out! It just sort of happened, ewps. I told her the honest truth...I wasn't good. I have horrible flashbacks of when nick was dying and every time Kenny was so sick, I thought he was going to die. I have anxiety over what to,or row will bring and...well...pretty much...I'm a mess. The PTSD and high anxiety that I've been facing has gotten me to the point where I keep asking what more? Waiting for the other shoe to drop. I said I was afraid of losing Kenny and she completely agreed that that was a very valid fear. She told me she love Kenny and is so sorry that were going through all this with him. I've been so strong for so long, that everything has finally caught up to me. The doctor reassured me that as of today, Kenny is stable. His lungs sound a little sluggish, but attributes it to a cold starting.
This whole life is something that I NEVER in a million years, thought I would be experiencing. It's very hard, actually...it's very painful. I did mention to his doctors about a make a wish for him and we all are looking into that. We don't know what the future holds for him...and I get physically sick just thinking about it. I want him (and the rest of my kids around until they are old and have to bury my 100 year old a$$). There is just so much on our shoulders and it weighing very heavy. Some say its our cross that we bare...but no..it's just so very much.
So...our Kenny is "stable" his is ok and for now, I will take that with a smile...but deep inside I just wish he was just healthy.


This picture is one of him sleeping with his favorite baby...buddy.