Kenny is home

Sorry I haven't gotten around to updating all of you....its been one thing after another! Yes, Kenny is home. He still has the RSV/pneumonia but is finally starting to feel a little better. He is getting breathing treatments every 3 hours or else he goes into these coughing/wheezing fits. He is still not eating really well (he wasn't eating great before, but now if anything with texture goes into his mouth he pukes). I am kind of ticked off at the hospital that they discharged him when they did. I think a lot has to do with the medical coverage he has. Not to mention that I couldn't get to the hospital on Monday because my cornea tore from my stupid dry eyes and scar tissue from previous abrasions...can you say "OUCH"?! Anyhow. He was crying and not a happy camper at the hospital so when I did get there (my older sis drove me), they told me that he was ready to go home. Kenny has a ng tube in, the IV, and he had this bad rash all over him. But they said that he was going home! The nurse came in (after Kenny had an explosive diarrhea all over me) and I asked her why was he going home and that I didn't think he was well enough to go home...she told me that she didn't understand why he was going home either...um...hello!!!!So, whatever...he is home...he is miserable but he is home and I can take care of him. We have his oxygen, his breathing treatments and phone numbers to doctors and the hospital...oh...the hospital did set us up for a visiting nurse for 3 visits! They were more concerned with his developmental delays and my support network...again...hello...I know he is extremely delayed (the PT/OT put him at about 9-12 months of age)...I am extremely sad over this and wish I can shake him into being a normal 23 month kid, but I cant. I am doing my best as a mom and human being. He is in PT/OT/Speech therapy/feeding therapy what more can I do? I freak out every time he gets sick because I sit and wonder if this time will be the time that he dies because of his lungs...it FREAKING SUCKS. I am scared for him.
Anyhow...to make a long story short, he is home. Gina has a double ear infection AND an upper respiratory infection (RSV again), and now Kayleigh was up all night with a 103.4 fever, coughing and just miserable. Our night was full of breathing treatments, children's Tylenol/Motrin and baths...no sleep...I'm tired and very stressed but I am grateful for all of you that have said prayers and thought of Kenny. Thank you so very much.