Thursday, July 17, 2014

Our youngest child turns 6...


It feels like just yesterday that I gave birth to Gina. It has been a blur due to the fact that much of the time was taken up by caring for Kenny...but I am so grateful to God for blessing us with our Gina. She truly is a gift from God. She's a smart, caring, and funny little girl who loves to dress in her brothers clothes, not afraid to show her rough and tumble side...which includes Spider-Man, army guys and (as she calls them..and now we all call them...) Nurdle Turtles (aka: Teenage Mutant Ninja Turtles). 
Happy Birthday Gina...my beautiful angel sent down from Heaven. 

Monday, July 14, 2014

A picture worth thousand words

For the last two months, Kenny has been playing baseball with other kids with disabilities
Today was NEO Challenger Baseballs All Star game and awards cookout. Todays game was, shall I say...a little soggy, but we got the whole game in!
Kenny is playing with his "buddies" in the center.
  
 
 
 Kenny drinking a cup of water...
 Well, hello there Kenny!
 A quick "knuckles" then off to play ball!
 Up to bat!
 We decided to let Kenny try to hit the ball by himself!
 
 The pitcher was awesome and threw it right at his bat. Making it look and feel like Kenny hit the ball! Here he is at first base!
 Just as The Angels finished batting, it started to downpour...and hard! We had quite a long walk to the car, so needless to say, we were SOAKED, but we had fun! #whatmemoriesaremadeof
 
We ended up going home to get dried up before the awards cookout...
 
 
 Kenny even tried to eat ice-cream!!!
 
 
 
 
 He received an award, a baseball hat and a baseball. I never thought I'd see this little boy of ours act as normal as possible...playing ball! Its such a HUGE deal for us all. To see him love being a typical kid and getting an award for playing baseball like his big brother and daddy...melts my heart! I mean...look at that smile on his face!!!
 These two young adults were helpers...also known as buddies. They helped the kids bat, run, catch...just be there for them to assist with everything. Very caring and loving people who took time and volunteered their free time to work with these kids of various degrees of disabilities.
 And finally...Kenny's coaches...awesome.
The whole experience of NEO Challenger Baseball was one that I am beyond grateful for. Who knew that when my husband did all the signs for them when they had their big event in our town...that years later, our son would be part of that whole organization. I am without words on how grateful I am. God willing, next year he'll be back for another season!
 

Sunday, July 13, 2014

DreamNight at the Zoo 2014

Our family...minus little Tony because he was working, had a wonderful time at an annual event that the zoo and the local hospitals put on for chronically ill/medically fragile kids and their families...DreamNight at the Zoo.
For the past few years, we've been invited to attend this event which gives sick kids and their families a chance to unwind, relax and enjoy an evening to watch our kids smile.
 
We were up close and personal with the animals...
 
 This was Kennys all time favorite thing at the zoo... next to the train ride...

 Kenny on the train...loving life...
 We all got to feed the birds...
 the kids got their faces painted...


 Kayleigh got a koala...which looked more like a poodle...
 Sydnie got a koala as well...only...this one looked like a rock with a face...
 and Kenny and Gina chose to trade gender related rolls...Gina chose spiderman and Kenny opted for a butterfly...mmm...ok...my kids are confident in who they are and what they like. Who am I to tell them otherwise. ;)
 more of the merry-go-round....

 and Tony and I watching and enjoying the kids smiles (not to mention...going aroud and around on that carousel made me slightly dizzy and nauseated).

 and finally...Kenny was in awe of these characters walking around...totally fascinated by them...
(notice my kids stashes of cotton candy...yes...that was free too...can you say sugar overload?)
 and what would the night be without the great big mouse himself...Mickey!
A special thank you to MetroHealth Medical Center for caring for Kenny and inviting us to these special events that make having a medically fragile/special needs child just a little bit easier on all of us.