tag:blogger.com,1999:blog-8904923132446589250.post7137557153682817940..comments2023-03-25T05:28:00.949-04:00Comments on The Tomecko Echo: Over the rainbow...somewhere...somehowMichelehttp://www.blogger.com/profile/15294387653874378201noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-8904923132446589250.post-48688664742934795012010-06-23T18:35:55.763-04:002010-06-23T18:35:55.763-04:00Michele,
Almost everything you said is exactly how...Michele,<br />Almost everything you said is exactly how I felt 13 years ago. Monique wasn't premature but she was born with a rare genetic syndrome. She was/is extremely delayed. She started school when she was 2 and I was feeling the same things. She is an epileptic, she had never been with anyone else but family. I was scared to death on her first day! Monique had been receiving all her therapies at home until then. I have to say I spent at least two days a week with her at school for the first six years,lol. I popped in unexpectedly to see how they were treating her since she was non-verbal also. I demanded to see background checks on all her teachers and aides. I was a nightmare parent! <br /><br />I think looking back now that it was the right thing to do. It was very hard for me then. She wasn't even old enough for regular school and I felt terrible sending my baby to school. But, it was the best thing we've ever done for her. Even though she's still severely delayed, she's 15 but mentally about 5, it was the best start for her. The brain is an amazing thing and her getting all the extra stimulation and therapies have helped get her to where she is today.<br />So, although it is really hard for you, it will be to his benefit in the long run.<br /><br />I will continue to keep your family in my prayers :) (((((HUGS)))))Michelle Alexnoreply@blogger.comtag:blogger.com,1999:blog-8904923132446589250.post-46931725494710332252010-06-23T10:20:36.520-04:002010-06-23T10:20:36.520-04:00We are dealing with very different disabilities wi...We are dealing with very different disabilities with our children...and I really don't have advice for what to do, or what is the right thing to do...I am trying to figure those things out for myself!<br /><br />If Kenny is getting lots of 1 on 1 with therapists, that is a great thing!<br /><br />I choose not to put Callie in school because she would get a single 20 minute OT session each WEEK...she is only 3-5 months delayed in fine motor. She would get nothing as far as PT, when she is 60%+ delayed in gross motor... I asked the school about it only to have them answer they have wheel chairs available for use at school for disabled students, but they want her to be able to write when she hits kindergarten... not the highest priority for this homeschool mom who is ok with delaying writing for her!<br /><br />You know your child the very best. No one knows what would be best for this precious little soul than you do. Trust yourself. You are his best advocate!mpencehttps://www.blogger.com/profile/09947756040175745380noreply@blogger.com