Thursday, November 17, 2016

On this World Prematurity Day 2016

So for today, I am reflecting on my twins, my 23 weekers...
 I never got to bring Nick home, but every time Kenny does anything new, cute, or funny...I think of what Nick would have been like. Its a hard pill to swallow every day. Knowing how Kenny is thriving and brings so much love and joy to everyone (when he is not having meltdowns and getting into everything...thanks developmental delays and autism)...I don't think I will ever get over losing Nick.
But anyhow...
I am beyond thankful to God and all that exists that Kenny is here and has come so far!
 This picture is when his eyes were starting to open from being fused. Parents never see this part of development...it usually happens inside the mothers womb...I was one of the lucky/unlucky ones that got to witness this miracle...
 So now that I shared some things that are heavy on my heart (still to this very day),

I want to share with you a few thing that my son...a surviving 23 weeker twin, who has many health and developmental issues, has accomplished just recently:

video
He has learned to count by 5s to 60...using a clock.
The little boy they told me was going to never walk or talk.
The little boy they gave a 3% chance of survival.
Its taking a little longer than other kids his age, but with the help of some of the best teachers and aides...he is really showing that he is a strong and smart kid! 

...and one more thing...

Kenny got picked from the entire school to have his artwork sent to this!
He is being entered under the "special artist" level! 
Yep...one proud momma over here!
I guess he gets he picked up mine and my husbands artistic skillz!

So, please wear your purple today
in honor of every baby born too soon!
 

Be it the earliest one can be born and survive, or one that was just a few weeks from due date! Everyone has their own story.
Every preemie, parent and family member close to that preemie and parent deserves to be recognized  today.
With a 23 weeker, doctors don't know what his outcome will be in life...even at age 9, there are issues that will be very unexpected. He has many brain, lung, feeding and muscle issues...but with love and a great team of doctors, specialists, teachers and aides...we can breathe a little bit in between the stress (LOTS OF STRESS) that caring for a child with special needs/medically fragile comes with.